Links to Amazon on this blog are affiliate links*

Multiple Syndromes – The Story of Emma

Multiple Syndromes – The Story of Emma

My husband and I got married not even a year into our relationship. We loved each other so much; he loves my daughter as if she was his own.

After about 2 months of being married, I got pregnant. On October 9, 2018 we were the happiest couple on earth. He loves kids, so he was very ecstatic about having his own.

In November and December, we had family down for the holidays. Everybody was so excited for baby Emma to arrive in the summer of 2019.

They were giving us gifts, and our families threw us a gender reveal party in mid January. We found out it would be a baby girl. My oldest daughter was super excited to have a baby sister to play with.

February 11, 2019 I went in for my anatomical ultrasound, which is done at 18 weeks.

As I was lying on the bed, I felt my heart so heavy and I was very cold. The ultrasound tech did his job and examined baby Emma from head to toe.

When he finished, they took us into a private room. I instantly knew something was wrong.

The doctor came into the room in such a hurry and was very concerned. He took a deep breath and started explaining that my sweet baby Emma had several different types of defects, and that he could not diagnose her with just one syndrome.

  • She had less than 20% amniotic fluids
  • Her heart was upside down
  • Her kidneys were full of cysts, and they where not connected to her urinary tracts
  • Her lungs where not functioning as they should be

I was in such pain and so heartbroken I couldn’t even listen to what he was saying. My husband took my hand and we both started shaking.

We had so many questions that the doctor couldn’t answer. They sent us to a specialist 4 days later and the specialist confirmed that it was such a 1 in 4 million case that they didn’t have a name to be able to diagnose what type of syndrome my baby had.

He told us we could take her to term and she would only have less than 1% of survival rate, or we could terminate and she wouldn’t suffer at all. We left heartbroken, in tears, and so devastated.

We talked about it so much, we cried, and finally came to the decision of terminating the pregnancy.

She was born at 22 weeks and she lived for about 38 minutes- which were the happiest for us and she went in peace.

This is a guest post from Andrea Paredes.

Read April’s full story by clicking above.

Read stories of terminations for medical reasons by clicking above.

Share your story by clicking above.

Add your angel to the remembrance page by clicking above.