Author: mamasorganizedchaos
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Edward’s Syndrome – The Story of Zoe Jane
We interrupted my pregnancy of Zoe Jane who had Trisomy 18 (T18) or Edward’s syndrome. This is technically a late-term abortion. We even had to go out of state to do it, but I don’t have any regrets and I’ll write the whole story for you. I’ve learned to not be so judgmental going through…
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Severe Ventriculomegaly – The Story of Breeze
The doctor walked in, pulled up a chair close to me and looked me in the eyes. She said… “I’m concerned that this baby will not survive. There are many things wrong here and I will begin with the most severe. Both fluid ventricles in the brain are significantly bigger than normal, one measuring 26…
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In Honor of April Rey 2019
We have started a tradition every year of raising money to go to a good cause, in honor of April Rey. We do this around her birthday 8/8 in her memory. What would have been April’s 2nd birthday is quickly approaching. I won’t be able to run the race this year, but we are still…
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Triploidy- The Story of Zachary
On January 21st 2019, my life would be forever changed when we found out we were expecting a baby… however, what ensued were many scans due to bleeding and spotting throughout my pregnancy. At each one, the ultrasound technician would reassure me that our baby was fine and that they couldn’t find any cause of…
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Brain Anomalies- The Story of Reagan Scott Rainville
I never imagined sharing ‘my story’, or being someone who has a story. I never imagined myself being the mother of an angel either. My husband and I were new parents, happily planning our family, planning, charting and timing it all. Eager parents to begin life with the family we were creating. Our journey started…
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To The First Time Mom Who Made The Heartbreaking Choice To Spare Her Baby Pain
Dear Mama, I see you. I see the trauma on your face. The sadness and grief that hits so hard you can’t breathe. I see your empty arms and your empty belly. I see the motherhood role that is all consuming you, yet is ever so silent to the world without your baby in your…
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Trisomy 18- The Story of Elijiah
Im Haley, I’m 23 years old. I have a 5 year old. son, 4 year old daughter, 13 month old daughter and then along came Elijiah, our son who I had to terminate at 20 weeks gestation, and the story follows. So, I went to Emergency room due to bleeding during pregnancy at around 9…
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Trisomy 18- A Story With The Wrong Initial Diagnosis
Today we have a guest post from a mom that chose to spare her baby pain. She was given a Smith Lemli Opitz Syndrome Prenatal Diagnosis as an initial likelihood and possibility. I’ve always wanted to be a mom. I spent my younger years caring for children- as a sister, a cousin, a day camp…
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I Can’t Imagine Life Without You
Dear William, I read a story the other day about a baby that was stillborn. This baby was 35 weeks gestation. His mom had cholestasis- just like me. This woman had relatively low bile acid levels. Nothing was indicating that they should induce any sooner than the standard for cholestasis (at 37 weeks). But this…
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William Will Be Arriving Soon
Well, the time has come. I’m 34 weeks and 1 day. I’ve been admitted to the hospital today, and will be induced tomorrow. I am nervous on so many levels. I’m here because of my mama gut. My mama senses that made me feel like something wasn’t right yesterday. I spent the morning calling my…
