Author: mamasorganizedchaos
-

Myelomeningocele- Spina Bifida
We passed our 12w scan. Yay! All was well. We told the world we were expecting our little surprise. Little did we know our lives would change forever in 8 weeks. Our 20 week morphology scan showed our beautiful baby girl had an issue with her spine. We didn’t think much of this at…
-

Cloacal extrophy- Baby Boy
This is a guest post submission about a baby that had the diagnosis of cloacal extrophy. His parents made the agonizing choice to terminate the pregnancy and spare their baby a life of pain. At our 12 week scan, the sonographer thought there may be something wrong, possibly an omphecele. We were scanned again at…
-

Mosaic Trisomy 22 – The Story of Laelynn Faith
Today I would like to share with you the story of Laelynn Faith. Laelynn’s mom, Krista, found my group online, and she’s been an incredible source of inspiration for many. She’s spoken out about her daughter’s story in detail, and also chose to donate breast milk after Laelynn’s death. This is a long story, and…
-

Children’s Grief Book – These Precious Little People
After losing her baby sister when she was 2.5 years old, our oldest daughter, Caroline has had a lot of grief. She has so many emotions. One of the big ones is just anger. She’s angry that she didn’t get any time with her sister. She’s angry that she didn’t get to play with her…
-

Children’s Book Series to be Published Soon- Grief of Losing a Sibling to TFMR
Hi everyone! I know many of you already saw this information posted in the TFMR facebook group. I wanted to make sure it reached everyone, however, so I am sending it out via email as well. I am writing a children’s book series to help walk our kids through the grief of losing a sibling…
-

The Story of Levav
I want to tell you my story of the last few months. I want you to know that I had a daughter. That I became a mother. I was 24 weeks pregnant and I gave birth to a beautiful baby girl. She was not living. You see, we had learned a few weeks earlier that…
-

Anencephaly – The Story of Elias Micheal Arnott
We walked into our 20 week ultrasound excited and nervous. We were only nervous because we did not want to know the gender this time. We already had a 3 year old healthy boy and wanted this to be our last pregnancy, so we decided we’d like to be surprised this time about the sex…
-

Bilateral Renal Agenesis- The Story of Jack
This is the story of Jack. His parents chose to terminate a very wanted pregnancy for medical reasons after finding out he had bilateral renal agenesis. They made the choice to spare him pain and take on the pain themselves. In January 2019, Josh & I sought assistance from a Reproductive Medicine to conceive. On…
-

Parenting Through Grief is HARD
I’ve been silent recently. Quiet. Absent. There’s so much going on and also so little going on. I feel like I should be able to handle everything. I feel like I have no reason to be struggling at times. Then I realize I have every reason and it’s ok. Our daughter is struggling. If you’ve…
-

You Have a Stocking For Your Angel- Now What?
My sister makes stockings for everyone in the family. It’s been her little tradition for years now. So, every time a new baby is born, that baby gets a stocking. Heck, every time a new dog is brought into the family, he/she gets a stocking as well! Life for my sister has gotten busy. She…
