Author: mamasorganizedchaos
-
Ventriculomegaly – The Story of Willow Charlize
Our 1 in 1000 I was once joyously naive. I didn’t think I was immune to things going wrong in pregnancy, but I simply didn’t acknowledge how unexplainably and devastatingly wrong they can go. Even after an early miscarriage in my first pregnancy. It was heart-breaking but also encouraging to know I could fall pregnant.…
-
Hypoplastic Left Heart Syndrome- The Story of Thomas Gray Fitzpatrick
We found out we were expecting our first baby in October 2020. We were beyond happy and began sharing the news with family and friends. My pregnancy went well, I was feeling great other than tired. The months went on and we watched our baby grow with excitement- taking pictures every Saturday and measuring my…
-
TFMR Therapy – Survey
Hi fellow TFMR moms & dads- I am a TFMR mom and clinical psychologist. I made the excruciating “decision” to terminate my very wanted pregnancy for medical reasons at 23 weeks 5 days on April 2, 2021 as my baby’s brain did not develop properly. I miss my Shayla girl so incredibly much- I’ll never…
-
Trisomy 13- The Story of Aurora Borealis
It was September 25th, 2020. We first started trying for a baby April 20th. Our appointment to have our IUD removed had to be postponed due to COVID. It only took 2 months to get pregnant. We tried everything! I couldn’t believe my eyes when it finally happened, and I was the most grateful human…
-
Triploidy – The Story of Geula
Nearly two months have now passed as I write this. I wrote when it happened too, a grief-fuelled piece, raw with the pain and anger of what had just happened. It’s hard to tap back into those emotions now. I can do it, easily. But there’s resistance too because of how overwhelming they are. I’m…
-
The Path of a Genetic Carrier
For some, natural pregnancy is the hardest game of chance, the most terrifying roll of the dice life has to offer. It is walking into every pregnancy with the reality that you may have to put an end to it all. For those individuals termination is not a one time risk… it is something faced…
-
Crochet Weighted Doll – A Remembrance Item
I became aware of a shop on etsy (LilMommaCrafts) that makes weighted birth dolls. As a mom of a baby that is no longer here, the thought of holding a doll that is the same weight, and same size as her felt like it would bring some comfort- especially for our older daughter, Caroline, who…
-
Ritscher-Schinzel Syndrome- The Story of Aurora
There is nothing quite like becoming pregnant and knowing there is a chance it may come to a crashing end. An end due to choice. A choice that you never want to make, but it’s a choice nonetheless. It’s the choice to set the one you love most free from a broken body and mind.…
-
Election Day 2020
November 3, 2020. My heart is feeling the anxiety of today. My muscles are aching- a sure sign I’m stressed. Today is election day in the USA. I’ve always voted. Since I was 18, I knew it was my right and my voice. I did my civil duty and I went to the polls. I…
-
Diaphragmatic Hernia and Heart Issues- The Story of Aniyah Rose
It’s been a while since I shared my story. Back in 2015 getting the news of being pregnant made me and my family so excited. At the same time we also were planning a wedding and couldn’t be more excited for our son to become a big brother. The most exciting day was the first…