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Diaphragmatic Hernia and Heart Issues- The Story of Aniyah Rose

It’s been a while since I shared my story. Back in 2015 getting the news of being pregnant made me and my family so excited.…

Osteogenesis Imperfecta – The Story of Allegra Joy

The Story of Allegra Joy Imagine coming to the realisation that death is the best thing you can do for your child. That the cold…

HLHS- The Story of Layla Hailey Klar

On the morning of November 20, 2018, I drove to the hospital to deliver my baby; a baby I knew I couldn’t bring home. To…

Major Cardiac Abnormalities

I have found this website, and the Facebook support group, to be invaluable.  I had never felt so terrified, alone, and distraught, when I realised…

Anencephaly – The Story of Valentina

On July 9th, I had an appointment for an ultrasound at a high risk doctor in Savannah, GA. It was a rough morning to start…

A Heart Failure Momma

My name is Christine- 39 yrs old and a Heart Failure Momma. I was diagnosed with Congestive Heart Failure last Sept 2019. We didn’t know…

Duplication of Chromosome 2 – The Story of James

We have one living daughter and very much wanted to grow our family. When she had just turned a year old we somewhat surprisingly found…